Our family’s vision for Alex consists of three main aspects:
1. Identity. That Alex will be known individually. People will get the opportunity to know the quirky, joyful, loving adult he is. Instead of only being seen in terms of his disability, he will be seen in terms of his individual identity. He will retain a strong sense of his own identity.
2. Connection. That Alex will have many levels of connection with people, from passing everyday transactions and regular acquaintances through shared activity and places to enduring and satisfying friendships and family ties.
3. Enrichment. That his life has variety, personal interest, authentic community engagement, fun, skill development and other learning opportunities, risk and security in balance.
Alex participated again in the jog this year. Some team members made a vulgar display of their youth and fitness by actually running, for the first time in living memory. Alex encouraged them on by expending a great deal of energy singing and clapping. No wonder he was so exhausted at the end of it all.
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